Contents

Research 
New device study

Feel 20 years younger?
Help us confirm our impressive outcomes

Fundraising
Our cycling CEO
Your employer’s support

Research

New device trial for episodic migraine

We are working with the University of Kent on an exciting study to obtain data on the safety and efficacy of a new device. This portable device worn like headphones, with a hand-held control unit attached, is designed to stimulate the brainstem, where research has shown migraine headaches begin. It is non-invasive and painless so we think worth investigating.

To be eligible, participants must be suffering from between 4 and 14 headache days per month. They will need to be able to visit the Centre 4 days in total, 1 of these will be for training to use the device (a second day may be required if volunteers need longer to familiarise themselves with the treatment method). Throughout the trial (approximately 112 days) volunteers will be expected to keep a diary to record the frequency and intensity of their attacks and any other symptoms they experience.

Each treatment session with the device lasts between 4 and 20 minutes and needs to be carried out twice daily. You will need to be relaxed and lying down on a wedge-shaped pillow, but other than that it can be carried out wherever the participant wishes.

Participants will be split into two groups, one will be given the placebo device (which will not deliver treatment) and the other will be active users (ie. treatment will be given). You will not know what group you fall into until the end of the trial.

As with any study there is no guarantee that treatment will be beneficial, the device is at an early development stage. It is however a revolutionary idea and the information gained from this study could be really valuable for treating those with migraine in future.

If you are interested in taking part in the study and would like to know more please contact Rebecca Sterry by email at info@nationalmigrainecentre.org.uk or phone: 020 7251 7806. She can explain more about eligibility and the commitment that we need from volunteers.

 

Feel 20 years younger?

Help us confirm our impressive treatment outcomes.

If you registered as a new patient in the last year, you will have received an email on booking which requests that you fill in a questionnaire assessing your quality of life based on 5 simple multiple choice questions. You will then get a follow-up questionnaire at 3, 6, 9 and 12 months after your appointment to monitor your progress.

The results so far are impressive. The age represented by the quality of life scores, shows  on average our patients are 20 years younger just 9 months after their initial visit! However we are struggling to validate the data as so few people respond at 9 and 12 months. Hopefully these fantastic results are representative of the truth but we really need as many patients as possible completing all 5 questionnaires to be sure.

If we have adequate data to put to the NHS when we bid for contracts we stand in far better position to get funding for some of our consultations. Good outcomes on this NHS recognised EQ5D questionnaire is an essential tool for securing their support which will benefit both the charity and you the patients.

Thank you to those who have continued to respond every three months.

If you feel your quality of life has not improved as a result of being seen at NMC, please get in touch with our Chief Executive Heather Sim. There may have been something that we haven’t tried and we never give up on you until you are satisfied! She can be reached on 020 7251 7806, or alternatively get in touch by email at info@nationalmigarinecentre.org.uk.

Fundraising

Message from our cycling CEO!

Why I’m pedalling from Lands End to John O’Groats…

It’s been a longstanding ambition to cycle Land’s End to John O’Groats. I never thought I would get to the stage where I was ready to take the plunge, but in a few week’s time I will embark on the 1,000 mile route in aid of National Migraine Centre.

I am not just doing this because I am the Chief Executive, or because I am a migraine sufferer wanting to help others, but I want this exercise to show what can be achieved if you have the best advice and treatment, and manage your lifestyle carefully.

Before working at NMC and benefiting from the doctor’s advice and the Centre’s research findings, I regularly suffered debilitating attacks. Many a family holiday, social event and weekend has been ruined by the unpredictability of my migraine.

Having said that, I have never been one to make a fuss, like many of the patients I speak to at the Centre.

I struggled for years without consulting my GP, let alone a specialist, and instead self-medicated or put myself to bed when nothing worked, going into overdrive when headaches cleared.

I am sure this resonates with many of you so if you want to show your support for my foolishly ambitious undertaking  please go to my Virgin Money Giving Page and make a donation.

Your support will make all the difference in spurring me on through the Highlands!

Thank you.

Your employer can support us

Work for a large firm? Maybe you can nominate NMC as their charity, or have your donations matched.

We’re always looking for new ways to fund our services and a big part of that is applying to grant making trusts. Recently we were looking to apply to the law firm Addleshaw Goddard‘s charitable trust but due to high demand, their open application scheme is closed for now. However, they are still allowing applications from charities who have been nominated by one of their employees. If any of our supporters are employees of Addleshaw Goddard, we would really appreciate you nominating us so we can apply for funding and keep providing our excellent care.

Likewise, most large employers have a charitable arm and applications for funding are always taken more seriously when they come with their own employees backing. If you would like to discuss how you can go about getting the most from your employer or getting match funded by them for any donations you give us, please call on 0207 251 3322 and someone can advise you.